Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.

Prince Frederik of Luxembourg died from a genetic disease called PolG, but experts hope his passing could bring more ...

Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...

Prince Frederik, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died at the age of 22. He ...

Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...

Johns Hopkins scientists develop mRNA "booster" as potential new way to treat rare genetic diseases marked by too low levels ...

Prince Frederik, 22, was a founder and the creative director of a foundation that raised awareness of POLG disorder.

A rare muscle disorder has taken away a Metro East girl's ability to ride a bike, but a Swansea couple has donated the ...

P rince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, died in Paris ...

Prince Frederik of Luxembourg died after years of being diagnosed with a rare mitochondrial disease called PolG.

Luxembourg's Royal Family has announced the death of Prince Frederick at 22 years old.

Cherokee Nation Principal Chief Chuck Hoskin Jr signed an executive order in February 2024 establishing a Rare Disease Task ...